Throughout the SJIA journey, we have met so many families who have kids with SJIA and have made deep connections with them. We have mostly met them online since there are no conferences or other events focused on SJIA where one can meet many SJIA families. We thought it was high time to organize a day devoted to SJIA, to bring together families, doctors and other medical experts focused on this disease.
We are working with the Rheumatology Department at Cincinnati Children’s Medical Center to organize SJIA Family Education Day. Its coming up on July 22nd. We planned it on a Saturday so families can easily attend. The event is free. We even have a separate room for kids and Child Life helping organize activities for them so parents can focus on the event.
What’s planned for the day
-Talks by SJIA experts on the disease, the medications etc
-Question / answer sessions where parents get to ask questions of experts
-Parent roundtables where everyone breaks into groups on topics they are interested in