Schedule for SJIA Family day at Cincinnati Children’s on July 22nd

This weekend will be the first ever SJIA Family day. More than 80 people are registered to be there – parents, pediatric rheumatologists from Cincinnati Childrens and anyone else interested in the disease. Children will be there as well and we have a room for them with Child Life helping out.

Here is the plan for the day. If you are in the area, then please do stop by. You can still register or register on the spot.

• 8.00 am – 9.00 am: Breakfast & Settling in kids in Children’s room
• 9:00 am – 9.15 am: Welcome & Introduction: Jon Boutelle, Dr. Hermine Brunner
• 9:15 am – 9.45 am: Parents Panel: Issues & Concerns of SJIA parents (Rashmi Sinha moderator, Kari Cupp, Katie Chevrier, Amanda Hendrix, Tammy Woodwick)
• 9:45 am – 10:15 am: What is SJIA: how is it different? – Dr. Hermine Brunner
• 10:15 am – 10:45 am: Treating New & Refractory SJIA Patients – Dr. Jennifer Huggins
• 10:45 am – 11:00 am: COFFEE BREAK
• 11:00 am – 11:30 am: How to recognize and treat MAS – Dr. Alexei Grom
• 11:30 am – 12:00 pm: Research Updates for SJIA & MAS – Dr. Grant Schulert
• 12:00 pm – 12.30 pm: Current clinical trials in SJIA & MAS – Dr. Daniel Lovell
• 12:30 pm – 1.15 pm: LUNCH & NETWORKING
• 1:15 pm – 1:30 pm: Special Presentation (Leah Bush / with kids in the room)
• 1:30 pm – 1:35 pm: Five min talk about PR Coin – Dr Esi Morgan
• 1:35 pm – 2:30 pm: Expert Panel: Parents can ask questions of SJIA Experts (Dr. Alexei Grom, Dr. Grant Schulert, Dr. Dan Lovell & Dr. Esi Morgan)
• 2.30 pm – 3:30 pm: Roundtable Discussions (small groups on topics like MAS / Lung disease in SJIA / Growth Issues / Arthritis / Multiple Diagnosis)
• 3:30 pm – 4:00 pm: Parent Tips: 5 Minute talks by parents (Kari Cupp, Philip Reardon, Hether Klopping, Leah Bush)
• 4:00 pm – 4:15 pm: Event Wrap-up