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Home > Archives for Clinical Trials

IL 18 Binding Protein (tadekinig alfa) gets Breakthrough Therapy and Orphan status from FDA

Jonathan Boutelle | April 4, 2017 | 4 Comments

The Swiss biotech company AB2Bio has been working for some time on tadekinig alfa, a medicine that blocks the IL18 pathway. Today they received news that the medicine has been granted both “Breakthrough Therapy” and “Orphan” status by the FDA.read more

TrialReach: a new way to match patients with clinical trials

Jonathan Boutelle | February 6, 2015 | Leave a Comment

blogheaderimg-04TrialReach is an interesting new service for matching clinical trials with patientsto develop their service for matching patients with available clinical trials. This is a really cool idea. One of the things holding back research into rare diseases like SJIA is getting enough participants into the clinical trials so that the research can happen.read more

Round up of clinical trials in Systemic JIA

Rashmi Sinha | February 6, 2015 | Leave a Comment

blogheaderimg-03We did a check on the awesome clinicaltrials.gov website recently to see what clinical trials were happening for SJIA. The good news is that there are 7 total: 4 that are currently recruiting for patients, and another 3 that are in the planning stages but haven’t started recruiting yet.read more

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  • 22 Jan 2019
    Frank Jones said:Sorry guys, I thought this was an email not a public comment. Thank… on - Systemic JIA Foundation is a IRS approved 501(c)(3) charity now
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    Frank Jones said:Hello, I am a father of a SJIA kid. We are having a fund raiser at my work and… on - Systemic JIA Foundation is a IRS approved 501(c)(3) charity now
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    Jeanne said:I have had problems with my ears for the past 30 years due to inflammation. I have been put… on - Vamorolone: A steroid replacement with fewer side effects
  • 31 Jul 2018
    Catherine said:So, I recommended this(TADEKINK ALFA) I did my research to the family's father, he did what he had to do,… on - IL 18 Binding Protein (tadekinig alfa) gets Breakthrough Therapy and Orphan status from FDA
  • 20 Jun 2018
    Maria Torresan said:I have a rare disease call Idiopathic Subglottic Stenosis. Where my body is attacking its self creating scar tissue that… on - Vamorolone: A steroid replacement with fewer side effects

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