As we grow the foundation, we added a Patients Advisory Board so we could have better representation of the SJIA patients helping us make decisions about how best to serve our goals of finding a cure for SJIA. We have added three parents of kids with SJIA. We have been working with all three of them for some time, and know them well. They understand the purpose of the foundation and its philosophy and approach towards helping move SJIA treatment forwards.
The three parents are: Leah Bush, Sabrina Dunlap and Kari Cupp. You can learn more about them here.
Now that they are on board, you can expect us to pick up momentum in organizing more events and fundraising to support SJIA research.